Posted in Digital Democracy, Media, Motherhood, Pembrokeshire Post, The Up-side of Down's, Uncategorized

A World Without Down’s?

I’m a big fan of Helen Fielding’s ‘Bridget Jones’s Diary’. When I first read it, some of it felt EXACTLY like my own diary – especially the daily stats on weight; food and alcohol consumption and generalised bitching about this squeeze or that. Well, OK Fielding’s diary was FUNNY!

Continue reading “A World Without Down’s?”

Posted in Arts Review, Pembrokeshire Post

Crochet Christmas is a labour of love

The Knitting Nanas of Narnia (well, Haverfordwest) have woven magic into the very fabric of the town (see what I did there?) proving that people power will beat fantastic but plastic any day….


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Posted in Motherhood, My Grand Disaster, Pembrokeshire Post, The Up-side of Down's

Shhhh it’s all on social media

A sneak peek into the secret world of social media

And how it’s saving Down’s syndrome

By Sarah Hoss

Down's is a medical term; not my label. Social media is being successfully leveraged to help society improve its attitude towards disability.
Down’s is a medical term; not my label. Social media is being successfully leveraged to help society improve its attitude towards disability.












Social Media (Facebook, Twitter, blogging, Pinterest, LinkedIn etc.) – or ‘Shmedia’ as I like to call it – is saving Down’s syndrome.

That’s a very bold statement. Stay with me, and I will show you how. But first, a little personal history:I was holed up in a leaky caravan in remote west Wales when I first began searching online for information and inspiration about Down’s syndrome. I was involved in a restoration project at the time. As a family we had a temporary caravan base for work and living space. Outside I was growing my own vegetables and keeping livestock. Sounds idyllic? I found it very tough.

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Posted in Motherhood, The Up-side of Down's

Living with DS. My life’s nice! How’s yours then?

I wrote this a while back but I stand by it all. Tomorrow is World Down’s Syndrome Day – so I’m reblogging to raise awareness. Peace and love 🙂

Sarahhoss's Blog

My daughter and disabled son all dressed up for a weddiing We do occasionally get invited – and we do dress appropriately 🙂

It can be a tough road, with many potholes along the way. A great deal of information about what a disaster Down’s Syndrome can be is available already online. I don’t intent adding to it! Instead, I prefer to accept that for many, their mindset is such that they will never manage to get over their own discomfort and that becomes a barrier for them in seeing beyond the disability to the person and the valuable life that they are leading.

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Posted in Reports

The road from Rebecca to a new digital democracy

Note: I’m posting this on my personal blog so that I can freely express my opinion and probably also expose my rudimentary knowledge of social history. I didn’t study History at University, indeed, I left school at 16 and only graduated as a grown-up mum a few years ago. Therefore, this piece may stagger across the cobbles of time on precarious high heels – and I may end up falling over. But at the risk of going posterior over decolletage, I feel a polemic coming on.Here it is. It gets up my nose when I hear (mainly) English politicians banging on about ‘Big Society’. Even though, like Mothercare and Apple Strudel how could one possibly object to such high moral aspirations? Continue reading “The road from Rebecca to a new digital democracy”