Posted in Digital Democracy, Media, Motherhood, Pembrokeshire Post, The Up-side of Down's, Uncategorized

A World Without Down’s?

I’m a big fan of Helen Fielding’s ‘Bridget Jones’s Diary’. When I first read it, some of it felt EXACTLY like my own diary – especially the daily stats on weight; food and alcohol consumption and generalised bitching about this squeeze or that. Well, OK Fielding’s diary was FUNNY!

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Posted in Motherhood, My Grand Disaster, Pembrokeshire Post, The Up-side of Down's

Shhhh it’s all on social media

A sneak peek into the secret world of social media

And how it’s saving Down’s syndrome

By Sarah Hoss

Down's is a medical term; not my label. Social media is being successfully leveraged to help society improve its attitude towards disability.
Down’s is a medical term; not my label. Social media is being successfully leveraged to help society improve its attitude towards disability.












Social Media (Facebook, Twitter, blogging, Pinterest, LinkedIn etc.) – or ‘Shmedia’ as I like to call it – is saving Down’s syndrome.

That’s a very bold statement. Stay with me, and I will show you how. But first, a little personal history:I was holed up in a leaky caravan in remote west Wales when I first began searching online for information and inspiration about Down’s syndrome. I was involved in a restoration project at the time. As a family we had a temporary caravan base for work and living space. Outside I was growing my own vegetables and keeping livestock. Sounds idyllic? I found it very tough.

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Posted in Motherhood, The Up-side of Down's

Living with DS. My life’s nice! How’s yours then?

I wrote this a while back but I stand by it all. Tomorrow is World Down’s Syndrome Day – so I’m reblogging to raise awareness. Peace and love 🙂

Sarahhoss's Blog

My daughter and disabled son all dressed up for a weddiing We do occasionally get invited – and we do dress appropriately 🙂

It can be a tough road, with many potholes along the way. A great deal of information about what a disaster Down’s Syndrome can be is available already online. I don’t intent adding to it! Instead, I prefer to accept that for many, their mindset is such that they will never manage to get over their own discomfort and that becomes a barrier for them in seeing beyond the disability to the person and the valuable life that they are leading.

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Posted in Motherhood, The Up-side of Down's

Is Down’s Syndrome Cool?

Hello is it me you're looking for?
Hello, is it me you’re looking for?

‘Get me an agent’











I have the occasional word about my experiences around Down’s Syndrome on this blog, and tend to keep this aspect of my life separated from my professional life as a journalist and PR. But this week my worlds collided, leaving me wondering if this post belongs on my personal or professional blog. Perhaps I will post on both?

In the week that I attended three interesting conferences – one about Autism and two about social media my social networks were buzzing about a little boy with Down’s Syndrome chosen to model for mainstream British retailer Marks & Spencer.

Suddenly Down’s Syndrome is cool! That is a sentence I never thought I would ever have the need to write.  Amazing things do indeed happen.

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Posted in Motherhood, The Up-side of Down's

Had Enough of Holland?

Welcome to Holland – NOT!

I am not Holland!
My gorgeous boy – growing up fast.
(Extract from Emily Perl Kingsley:) When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives.

You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome To Holland”.

“Holland?!?” you say, “What do you mean “Holland”??? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

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